Proverbs 3: 5-6
Trust in the LORD with all thine heart; and lean not unto thine own understanding.In all thy ways acknowledge him, and he shall direct thy paths.

Sunday, July 27, 2014

What being a special needs mom feels like

Click on the link to hear and read a few good words from a special needs mom!

Chuck E Cheese

The only thing I tried after our dentist appointment was Chuck E Cheese. IT WAS A DISASTER!!!!!!!!!!!!!!!!!!!!

Trenton was in sensory overload. Andrew didn't like it. I think he was in sensory overload as we left rather quickly. Trenton ran from ride to ride going 100 mph. He would sit on a ride, put in the coin, ride the ride for ten seconds, and try to get off. Therefore, I was left trying to force him to stay on the ride until it stopped so he wouldn't get hurt or get him off the ride. Most of the time I took him off the ride and the second I put his feet on the ground, he we went running full speed ahead. There was no looking around at anything. Eyes had to be on him or he would have gotten away like he did on the 4th. It took two people to tag team Trenton while one person took care of Andrew. Andrew was not going to run away because he was a little scared.

I took a few pictures of Trenton on a few rides but the pictures give a totally different story.

 Trenton liked how the steam came out of this ride. However, he didn't stay on this ride any longer than the rest. Nevertheless, it was the only few seconds that I saw a smile!


 Andrew did not even make one complete turn on this small ride. He did NOT like Chuck E Cheese.

Once again, this experience was not relaxing or enjoyable. We were only in the place for a very short time. Its just a reminder of how our family can't do anything. I really really wonder what it would be like to relax and watch your children play and enjoy themselves???

Saturday, July 26, 2014

Andrews first trip to the dentist

Andrew had his first dental exam on Friday with our fabulous pediatric dentist. His first exam was going to be in October. Lately I had noticed that three of his back teeth were turning dark rather quickly. Therefore, I moved his appointment up and, unfortunately, we received bad news. Andrew has to have some surgery on his teeth in the next few weeks.  Andrew will have to go to the hospital and be put to sleep in order for the dentist to work on three of his teeth. These three teeth are so bad the doctor might have to do a crown on them. He mentioned one might need to be pulled out and another might just need a filling in. They are three teeth that he will have til around age 11 which is why he needs to have it taken care of.
Bad teeth and autism go hand in hand normally......ugh....we are finding out first hand how true that statement is.

Andrew did not do very well waiting for the dentist. In fact, he caused an awful scene in front of a lot of people. However, I am used to managing these scenes.

He is extremely fussy in the below picture waiting on the dentist.
 After the dentist he was worn completely out so he took a nap.

Genetics play a bigger role than environmental causes for autism

Great article on how genetics plays a bigger role than the environmental issues with autism.

Friday, July 25, 2014

Andrew is getting ABA!!!

I am very happy to inform you that Andrew had his first session of ABA in our home with Alicia this week! We just love Alicia and wish we could have her with us all the time. However, she is going to work with both boys from now on. She will work with Trenton for one hour and then Andrew for one hour!

Andrew also had his first solo session with Heather this week too! We love her too and I am very excited for Andrew to have his own session with her weekly too!

Andrew did excellent for both ladies this week!

Our therapy schedule is starting to get real crazy! Its a good thing! We have to prepare for their future and it has to start now!  Juggling and managing two boys with autism and their therapy schedule is about all that one special needs mom can do!    

Thursday, July 24, 2014

What it is like to have Aspergers

The video that I have attached at the bottom does an excellent job at describing what high functioning autism individuals, formerly known as Aspergers,can feel like. It's horrific! So just think what Trenton with severe autism feels like. Think what Andrew with his type of autism feels like. The doctor who diagnosed Andrew clarified that Andrew was not Aspergers, his autism was more complex.

 A lot of this video reminds me of both of my boys. The one that really stood out was how water feels on their skin. For one, Andrew hates water being splashed on his skin, especially his face! If it feels like hail hitting his! Sickens me as a parent. I will do everything to make sure he does not have to feel this.  In fact, this  past week he has cried a lot while being in the pool and sometimes his tears came from being squirted in the face with water. If it felt like hail, I don't blame him for crying.  Andrew's behaviors are changing for the worse lately. It makes my grief, sorrow, and stress magnified to a much higher level than it has been in a long time.
On some days I have had about all I can take of the people who think my kids just need to "toughen up". Many, including some close to us, think this of Andrew. I hope this video opens up your eyes a little.

As time ticks on, the boys are growing a much larger gap between children their age and themselves. It makes everything harder. It is easy for them to blend in while they are young. Trenton does not blend in anymore. Andrew still blends in but a year from now he won't unless he makes HUGE gains in the next year. I have seen a big difference between him and his cousin, Lincoln the past few weeks. Over all, Andrew is displaying much more difficult behavior than a year ago. It scares me! (Just a reminder that I don't "sugar coat" anything. I don't hide anything. I tell it like it is! This blog is all truthful facts of what life is like with these boys. )

I hope you take time to watch the video. Also, a reminder that if you have Netflix, take time to watch Sounding the Alarm. It will be an eye opener for many of you. Not for me...but for many of you.

Wednesday, July 23, 2014

Thank you!

I owe someone a thank you and I don't know who it is. If you read this, you know who you are and what you did! I thank you from the bottom of my heart. When I heard the news on Tuesday, I was left in tears!! Many of thanks!

I don't doubt at all that my prayers are not being heard for the boys because they are. God tells us he hears the fervent prayers from the righteous and he answers them. It may not be how we thought or how we want him to answer but he answers them. My prayers are being answered through many of you!
God is good! HE is real good!