Sunday, December 21, 2014

Blessings

My two blessings!!!
I can't believe I got a picture of both looking at the camera!!!!!!!!!!!!!!!
Always and Forever boys!

Saturday, December 20, 2014

Christmas with Grandma and Grandpa

We celebrated Christmas with Grandma and Grandpa today!!! We had a great time and the boys loved their gifts!!! Andrew kept on asking for more presents all day. He sure knows what presents are!






 Andrew is in hog heaven with his Lightening McQueen toy box!!!

 The boys love their chairs from Aunt Jenny and Uncle Sol!

 Trenton giving Grandma some love!!! We all love these moments!

Dentist & Doctor

I keep telling myself that taking Trenton to the doctor and dentist has to get better sometime. But, its simply not getting better yet. In fact, it keeps on getting worse.

I knew Friday was going to be a rough day. Trenton had a dentist appointment at 9:30 followed by a doctor appointment with his developmental pediatrician. Trenton's dental appointment was a check up. The dentist simply wanted to look in his mouth and make sure everything was fine since his surgery two weeks ago. I told Trenton repeatedly that we were on our way to the dentist. Of course, he doesn't look at me and never responds so I have no clue if he knows what I am telling him or if he understands it. But I do it anyway. Honestly, I think he hears me but he does not have the ability to really think about what I am telling him and is unable to prepare himself.

The car ride went rather smoothly all the way to O'Fallon. Once I got about a half mile from the dentist office, Trenton knew exactly where we were headed. He started crying, fussing, shaking his body from one side of the car seat to the other, and was trying to undo his belt so he could get out of his seat. It was one of those moments where nothing I could do would calm him. Therefore, we made a dramatic entrance into the office. Trenton was screaming with huge tears rolling down his cheeks while I was forcing him into the door. I tried three times to let go of his hand to sign his name in but he was out the door before I even put the pen to the paper.
When I find myself in situations like these, I forget all common courtesy and politeness. For example, I know right where the treats are for the kids. The heck with asking nicely if I can have some for him, I just walk where I am not suppose to and grab them. Of course I get the looks from the staff and I know they are thinking, "Did that mother just do that?" I give them my look back that says, " Yes I did that and I will keep on doing it if I have to. Wanna trade me spots and see what you would do? I don't have these sweat pits under my shirt for nothing in the dead of winter!"

Our name finally gets called. We walk into the dental room and get started. I'm sure the sounds from Trenton's dental room portrays to the outsiders that we are brutally killing someone. It took three adults to hold him down for the dentist to simply look inside his mouth. Have you ever seen a movie where a patient is strapped to a bed in a mental ward that is trying to escape from his straps? You know....where they are twisting their body, raising their backs, hands, and head trying with all their might to escape the chains while they are trying to bite the person standing nearby them and spitting everywhere? Well, that was my son on Friday. I had to be one of the adults to help hold him down. Why in the world do places make the mother help in this task???
After the traumatic experience, the dentist looks at me and says, "You have to go through that just to brush his teeth?"
I replied with a quick, "yes."
She says, " Well you need to see if you can have some people at your house to help you every night because he needs his teeth brushed daily."
I kinda laughed and said, " Well calling for back-up every night just isn't possible."


We survived....not without some more scars but we made it through.

Next, it was on to Dr. Twyman at Cardinal Glennon. Since Trenton put up a good fight for over 30 minutes, it completely exhausted him. He took a nap from O'fallon to Cardinal Glennon. Once we arrived at the doctors office, his anxiety shot through the roof and once again he was fussing and crying. Luckily, this time I got him to calm down in the waiting room. However, that ended once his name was called back. The struggles continued again. Three different people tried to get his blood pressure but everyone failed. His fight was too strong for grown adults.

The majority of this appointment was Mommy talking to the doctors about his progress, sensory problems. hyperactivity and impulsive behavior, communication, and anxiety problems. Dr. Twyman said what I have said all along that his anxiety is driving him to be extremely hyper and impulsive. When he is at any other place other than home, he manages his anxiety good. It appears to others that he is managing himself well, but he really isn't. He works hard on shutting things out and is not able to filter out everything which leads to wild, hyper, and impulsive behavior at home. When he is home he is more relaxed so he releases from his day. Neurotypical people do this too....we do it by watching TV, having a cup of coffee, reading a book, or just whatever makes you feel good. Trenton is not able to unwind from his day like a normal person can so he goes wild.
The doctor decided to increase his anxiety medicine to see if it helps. She thinks Trenton is a case where he is going to need a lot of different medicine to help his anxiety, hyperactivity, and impulsive behavior. However, due to his age, we are just trying to see if we can get anywhere with just one medicine for that particular area of his autism. We will take it and see how he does on a higher dose.

All in all, our Friday was a very rough day. As always I ask myself..." Will it ever get better?"

Sleeping from dentist to doctor. He sucked on his blanket till he fell asleep.

He rarely lets me snuggle him. When he was calm waiting for his name to be called at Dr. Twymans office, he let me snuggle him. Of course, I had to take our picture. 

 His DVDs are his securities the past few weeks. He takes them everywhere and lines them up. Its his way of making himself feel better and secure when he isn't at home. Here are his DVDs at the doctor....

These are from therapy earlier in the week. He placed one in every seat. It was a good thing we were the only ones in the waiting room.




Friday, December 19, 2014

I LOVE YOU!

Last night was the first time Andrew spontaneously said, " I love you."
I was rocking him to sleep and he looked at me, smiled and said, " I love you." I can't express how sweet it was to hear. I have heard him say it numerous times but it is always repeating after me. Last night was a huge night!!!!!!!!!!!!!!

ECE Classroom

Yesterday afternoon we had Trenton's Christmas party in his ECE classroom. As always, Mommy attended and Nana went this time too. We had a great time watching Trenton at his party. However, we had to say goodbye to them too. Mrs. Edwards and Mrs. Jenny have been Trenton's ECE teacher and paraprofessional the past two school years. They have been fantastic with him! I can't brag enough about these two ladies. We have been very blessed to have had them impact his life like they have.  They both LOVE what they do for a living and it truly shows when are they around Trenton and the other children.

 Since special education was my major in college, I have a lot of knowledge on IEPs and what I want on my child's IEPs, etc. Again, I can't brag enough about Mrs. Edwards and how she would take to heart what I wanted for Trenton and did what she could to make it happen. The children in Flora that attend her class are very lucky. She not only had a great influence on our time with her but I know she does everyone who has her. We will miss them greatly and I know Trenton will too! He loved and looked forward to Mrs. Edwards class every Wednesday and Thursday.
Thanks so much ladies for allowing Trenton in your classroom the past two years!


Christmas party pictures!
He got a gift from his teachers!
 Playing a cute snowball game!



 Trenton's amazing team at the ECE classroom! We will miss you ladies.

For the record, Trenton did a great job hugging everyone goodbye yesterday at Olney and his classroom. He even hugged his classmates...it was so cute!

Thursday, December 18, 2014

Olney!

We had a grief-stricken day. We had to say goodbye to our family at Olney. Two and a half years ago  in August 2012 after Trenton's diagnosis, his first therapy placement was at Richland Memorial Hospital. I was referred to them by Trenton's EI team. It was the best referral of my life!!  Trenton was diagnosed one week before I was due to start a new school year at North Clay. I was in a state of shock and grief. I was trying to manage setting up a new speech therapists and occupational therapists for Trenton, battling insurance...while getting ready to start another year teaching 4th and 5th grade special education students. I did nothing but cry. I was so sleep deprived I had no idea how I managed to put one foot in front of the other most days.

Since I was trying to work at that time, my mom, Nana, took over Trenton's therapy schedule. She drove him to his speech and occupational appointments weekly at Olney. I kept in communication with his therapist over the phone or through Nana. At this stage in Trenton's life, he didn't utter a sound other than blood curdling screams that could crack through glass in an instant. He would kick and scream walking through the therapy doors. Nana was Super Nana and battled through it. By December, I had resigned and took Trenton to therapy myself. Soon it was me that was fighting the battles of getting him to walk into the building after a sleepless night. It was Mommy that would battle getting him into the therapy room and listening to him scream bloody murder. Unfortunately, all I could do was to sit, listen, and cry....and believe me I cried A LOT at Olney! Thank goodness over time, Trenton got better and loved going to therapy. Don't get me wrong, he still had plenty of moments the 2 1/2 years we spent there twice a week but the progress he has gained there is phenomenal!!!
Two and a half years ago he didn't say a sound, screamed at strange places, didn't understand ANYTHING, never slept a wink, and cried a lot. Now he can repeat many words on good days. He is great at using, "I want" on most days after much prompting, is starting to understand a lot more, and will walk into strange places. I could make a huge list of what he can do now but couldn't then. My point is....our therapist, who I call our family at Olney, had a huge role in this!

Therefore, it was a very emotional day saying goodbye to a group of women who became more than just therapist to us. They became our family. On many days, they were my therapist too! I have shed countless tears at Olney. I shed many of tears to his therapist and the front desk ladies who put their duties on hold and listened to me cry and vent! I can't thank these ladies enough!! They were there with us from the beginning of Trenton's diagnosis and Andrew's diagnosis. They listened to me cry over my worry of Andrew when I started suspecting that something was wrong with him. They were there for me when I needed someone. They not only loved my boys, but they loved me too. The feelings were mutual! I can't tell you how much I will miss these ladies! I will be forever grateful to them on having such a tremendous impact on my boys!

As this chapter in our book closes, I can't help but thank the good Lord who placed these people in our lives!
We love you ladies!!!


  After their therapy session today, they had a party for the boys!




1 John 4:7-8

Beloved, let us love one another: for love is of God; and every one that loveth is born of God, and knoweth God.
He that loveth not knoweth not God; for God is love.

There is A LOT of love these ladies displayed to us and vice versa!

Tuesday, December 16, 2014