Augmentative and Alternative Communication (AAC) is any form of communication that people use if they are unable or unwilling to use standard forms of communication such as speech. Since Trenton was 2 1/2 years old I have spent hundreds of dollars on different AAC forms to help him. I've tried several communication apps, sign language, communication boards, picture exchange systems, etc. I have invested countless hours besides all the money into finding something to help him. One year ago he was finally referred to get a high tech communication device and to see a specialist. It took almost one year of paperwork, special appointments in Indianapolis, and lots of phone calls and fights, but Trenton was finally approved for his own device and we finally have it in our hands!! I am so excited for this! It will take a while and definitely won't happen over night but I pray that this helps him and our family eventually!
So far the first half of 2017 has been fabulous!! All of the sweat, tears, and hard work is paying off. I am seeing answers to our prayers. I couldn't be more proud of Trenton and the team that the three of us are. We are really starting to see all of our hard work pay off. Nothing happens over night with us but it is all worth it! Our journey with a communication device is just starting. Hopefully, in a year from now our journey with our service dog in our home will be starting. I would have never imagined this all two years ago! All I can say is that God is good!
The first thing he told me on his device tonight was pizza:)
Lamentations 3:25 The LORD is good to those who wait for him, to the soul who seeks him
Sometimes right in the middle of this crazy world, things happen. You don't know at the time how they are going to change your life. God wants us to be patient and let him lead us to where we are really suppose to be.
We are all on this road in life driving to our different destinies and living our life. Some times we hit potholes. Some times we wreck and are out of commission for awhile. Our destinations change a lot along the way but we don't have a choice. We simply live the life that God gave us.
My journey in life has been adventurous. It has had a lot of heartbreak and difficult times. God steered me on a road I didn't want to travel. I had different plans and autism and divorce was not a part of my plan. However, I didn't have a choice. So I accepted the road God gave me. I did and am still doing what I need to do to provide for my boys and to give them the best life possible.
I cried for years because of autism. I cried watching Trenton go through his challenges and I still do. That heartache will always be there. I can't change it, it is what it is but I can do my best to give him the best and that is exactly what I do. The same goes for Andrew!
One day, my life crossed the path of a certain man. I never thought in million years that God would start to take care of me. I have always sacrificed for my family and never thought that God would send me someone. It took me awhile to figure out what was going on and at times I still can't wrap my head around it all. However, this thing we call life sure is amazing. God is good and takes care of his people!
Right in the middle of running around to therapies, making phone calls to insurance companies, and doing all the other things that mothers and autism moms do, something special was happening with this man that crossed my path.
The past several years I have received a lot of amazing messages from my followers encouraging me and supporting me. About half of the messages were always encouraging messages about how I needed a special person in my life to support me because I was great at supporting everyone else. I just blew those messages off. I didn't want any part of any man in my life. Well....to those of you who sent me those messages, I just wanted to tell you all that I did finally meet a man that supports me. You all were right! He was out there the entire time!
To others out there in the same situation as myself, just let life happen. It will come your way one day:)
Things have been so busy lately! There is just too much to talk about and to catch up on. I have been in over my head with appointments with the boys lately. However, I don't want to talk about that tonight. Instead, lets talk about family. My favorite part of our busy weekend was spending time with the people below.
One day my life crossed the path of the guy in the below picture and my life hasn't been the same since. I didn't expect to meet him. God placed him and his daughter in my life. He is an amazing Godly man.
Both boys get along great with him and his daughter. His daughter is fantastic with both boys. It melts my heart to watch her interact with Trenton and to watch Trenton smile and laugh back at her! Once again God isn't ignoring my prayers. He is answering them in some amazing ways.
This picture was taken at VBS this past week at church. These two are like two peas in a pod!
It's not a Tackitt get together without a baseball game!
I have one son who can't speak and one son who makes up for him! Andrew loves to talk and he says it all! No filter!
I took him to the matinee the other day while Trenton was at therapy. He ALWAYS wants candy when he goes to the movies. I told him that we were going to stop at the dollar store and get cheaper candy. We bought our cheaper candy and I put in my purse to hide it so we could walk in because you aren't suppose to bring in anything from outside. As we are walking i...n, Andrew starts yelling, "My mom is not sneaking anything in her purse. There is nothing in her purse okay. There is no candy in her purse. We aren't doing anything wrong, okay."
I couldn't even look the cashier in the eye. This boy just tells everyone absolutely everything!! I didn't even tell him that we weren't suppose to do that either! I'm not sure where this kid comes from on some days.
God bless him.
Last week was a first for me! I left Trenton with my parents over night. I haven't been away from him at night before. He has always had me at night. I am the person he wants at night if he wakes up. I am his person....therefore, I have never left him. But, for the first I did it last weekend. I handled it fairly well:)
The only time I got a little shaky was when my mom called me telling me he was walking around the her house crying and saying my name:( It made me upset but I knew he was in good hands. She got him to calm down and everything else went smoothly.
When I arrived home after the weekend, I got greeted with the most amazing smile from Trenton. I have NEVER seen that kind of smile on his face. He was so giddy! He kept putting his hand to his mouth smiling and looking me in the eye. It was an awesome moment that lasted for a good five minutes. He was SOOOO HAPPY to see me and I was so happy to see him!
Andrew and I had a good time on our adventure. We made a new friend, Alee.
I have so many new followers! Thank you so much! I like to introduce
myself from time to time so all my new followers know exactly who I am.
Tonight, I want to do that while I give you a little history on myself:)
I am a 36 year old Christian autism mom to two amazing boys. I love to
write about autism and to share my knowledge of IEPs and special
education. I also write about my faith and how to keep it on this journey of life. I have my bachelors in special education. Very ironic! It has
definitely helped me on my journey with the boys! I no longer teach. I
am just a single momma who takes care of the boys and their therapies. I
published a book last year that you can find here....
I enjoy doing book events for my book and speaking about autism and our life. If you know someone that needs a speaker, let me know!
I grew up in Southern Illinois in a small town on a farm. I LOVED the
small town life and farm.I grew up playing sports, loved to get dirty, and basically was a tomboy.
Now, I live in Indiana with my two sons. I LOVE to workout. Working out is my therapy:) I am a very highly involved parent. If you want to know the definition of an involved autism mom then stick around....you will learn:)
Aside from advocating and raising my boys, I love St. Louis Cardinal baseball and University of Illinois basketball. I enjoy watching the Dallas Cowboys and am a sucker for a good love story movie. I LOVE country music and enjoy singing along to it with Andrew. I try to make the best of this crazy life...the best that I can while raising a child with severe autism.
My oldest, Trenton, is 6 1/2 years old. He receives ABA full time and
speech and occupational therapy. He has a lot of sensory problems.
He has to be constantly moving and jumping. He is mostly non-verbal but
can say a few words when prompted a lot. He doesn't make eye contact. He does not do anything
age appropriately and probably never will. I have been through almost everything with him. His autism is severe. He has a service dog in training! YAY!!!
speak all day about his challenges. However, if you follow my blog, you
will eventually learn.
He loves his stuffed animals, Elmo & Friends, and youtube videos!
Andrew is 5 years old and will be starting Kindergarten next year! He is verbal and takes
language very literal which causes issues. He has a lot of anxiety. One of his biggest challenges is how to socialize
properly. His anxiety takes over in situations and he becomes very
He easily gets fixated on something and can't get it off his mind and
won't move on. Andrew is a huge Cars ( the movie) fan. He loves to play with his Cars toys, board games, and play outside.
It is not easy watching your child live their one life with such trials
and difficulties. It is hard to live a life with autism. The one
disability that no one can really understand. The one disability that
gets judged so often. Therefore, I decided I wanted to do as much
advocating and educating that I can in order to help my boys!
Both boys have taught me so much about the important things in life.
They have made me understand many things from the Bible much better.
I have my days where I get down and lonely just like you. It is very
common among autism and special needs parents. It was difficult in the
beginning of my autism journey to understand a lot of why questions.
However, I have learned to look at the positive and try to find out what
God is trying to tell me. I have learned to make the most of a
difficult journey. I give all glory to God and will praise him always
Thank you so much for being a follower and a supporter! You help me just as much as I help you!!!
T-man's therapist got a really good picture of him the other day at
therapy. I love when he smiles! It's very rare for him to smile and look
at me. He smiles and laughs at his animals and while he does his thing
in his own little world. However, I long for him to look me in the eye
and smile. He does but it is rare and I take full advantage of the
moment when it happens.
Overall, he has been in a haze lately and is struggling with trying to communicate. Normally, he is fairly
good to tell me, "pizza" when he wants it. However lately, he just goes
in the kitchen and looks at the fridge. He can't find the word "pizza"
in his brain to even say it. When I show him a pizza and ask him if he
wants me to cook it, he just stands there.
He has been getting really engrossed in his own world and has been
harder to get him to enter mine at times lately. It's normal for
Trenton to go through periods like this. It is just one of the mysteries
For the last two years I have drove Andrew to preschool and picked him up every single day. Andrew has had some of the best teachers who have worked with us and helped us tremendously with his struggles. His teachers were there for us last year with my divorce. They have helped us in many ways other than just academics. We loved his preschool and will miss it!
Andrew has improved so much since the beginning of this year. He is one hard working little boy who doesn't let his struggles get in the way! I am so proud of him!!!
Today Andrew had his last day there. I am not ready for the next chapter. Let's hope and pray we have a good year in Kindergarten
My heart just swells thinking of the love Andrew has for Trenton. One day last week, Andrew came home with two papers that he drew for Trenton. The one on the left is giraffes and the one on the right is an elephant. Andrew said he drew those because he knows Trenton loves animals.
Happy Mothers Day everyone! First and foremost, let's all remember the moms out there who have a difficult time on this weekend. Many moms have lost children or many people have lost their own mother. It's just a hard time for some folks, so let's all say a special prayer for those individuals this weekend.
My motherhood experience sure didn't turn out like I imagined. I don't have the white picket fence family. I don't have children where I can let my guard down with. Nothing comes easy for our family because we deal with the challenges of autism.
But, what I have is amazing and beautiful. Besides dealing with the trials of autism, we have a pretty wonderful family of three. We have big hearts that see the beauty in the tiniest of things. We have God with us and we are letting Him lead us on an incredible journey.
I am blessed to have a few reasons why Mother's Day is so special.....
1. I first found out I was going to be a mother in June 2009. I was so happy. I always wanted to be a mother and a wife. I lost that baby when I was 13 weeks and always think of my "forever baby" weekly. Even though I never got to hold that baby here on Earth, I will one day in heaven. That sweet little baby first made me a mother!
2. The second person that made me a mom is Trenton, aka T-man! He is the one that has made my motherhood experience much different than I imagined. Yet, he is the reason I am who I am today. I walk with him and his trials daily and I couldn't imagine doing anything else! We are an amazing team together. Him and I are learning the ropes of severe, non-verbal autism together. I am the only one that knows him inside and out. I know what his noises mean, I know what his body language means, I know what the different looks in his eyes mean....I know it all! He may not be able to tell me but I can tell how much love he has for me. I get the most amazing look in his eye everyday when I pick him up or come home. Him and I are accomplishing amazing things in the autism world and we will keep on doing it! Thank you T-man for making me the mom that I am today. Love you, Bubba!
3. The third little person that made Mother's Day so special is my Andrew, aka Lil A.
He sure does know how to make life interesting. He has the biggest, sweetest heart of any little boy that I have ever met and I will gladly take credit for it:) If I had more time to blog, I would make everyone tear up daily with happy and sad tears from my stories on him. He is such an incredible little boy. He fights his battles daily too and is another reason why the word "Mom" or as Andrew says, "Moochies" means so much to me. Love you so much Lil A!
Andrew gave me an early Mother's Day gift earlier this week. He made it in preschool and had to give it to me in the van after I picked him up. Needless to say, I LOVE IT!! It came with a card and the card had flower stickers in it. He said, " I know how much you like flowers so I wanted to make sure you had flowers." He is one sweet little boy!! I can't wait for the day for Trenton to make me something!!!
I would not be the mom that I am today without an amazing example from my mother and Grandma. Those two women mean the world to me. I sacrifice daily for my boys and they sacrifice daily for us. When I say the boys and I wouldn't be where we are today if it wasn't for them, we really wouldn't! My mom is one of the very few people that can babysit Trenton. My mom is one of the few people that is willing to come help us. It doesn't matter if we lived next door or two hours away like we do now, she is there when we need her. Thank you so much for all the sacrifices you make for us Mom! We love you so much!
Thank you so much Grandma Great for what you have done for us. The boys and I love you so much too!
Here are our favorite two women with Andrew.
I am very honored to say that I have been named as one of the top inspiring autism moms.
Below is a link to the article.
I have been blessed on this rocky road of autism. Life has a hand full of trials and tribulations. But, like I always say, there is always something good that comes out of the trials, you just have to look for it and find it.
I give all glory to God for where he is leading the boys and I.
I went with Trenton and his therapist today to the Bounce Barn ( a place with some inflatables and an open gym) for some community training. He lasted a half hour which was great! I would say we were probably in there about five to ten minutes too long because the last 5 minutes he had a meltdown and got on the ground kicking, hitting, etc. However, he recovered well and walked out. I didn't have to carry him out!!!! HUGE IMPROVEMENT!!
We went right when they opened and ther...e wasn't many people in there. It took both of us to tag team him and keep him safe. I know a lot of people were looking at us because they could tell something was wrong with Trenton. The older he gets the more he doesn't "blend" in. At one point a lady walked up to me and said, " I am so glad you are here working with him in this environment. Keep up the great work." Just that one little sentence made my day much better!! It was SO NICE to hear those words especially today because overall it was a very rough day......and we ended it at the dental office...NEED I SAY MORE ABOUT THAT FELLOW AUTISM PARENTS! LOL! #autism#autismawareness#specialneedsparenting
Here is a short video of Trenton in their gym. This was his favorite spot..no one was in there besides us and it was quiet....and he had free range to run and pace the entire time:)
The sun was finally out. The first time in a few days and I was excited to get the boys out for a fun time in the backyard today after school and therapy.
When I picked Trenton up at Harsha Autism Center his therapist warned me about some of his behaviors. I had a good feeling that our night was in for some rough patches and it sure was!
We hadn't been outside very long. Trenton was running in the yard like he normally does and I was pushing Andrew on the swing set. I am not sure what made Trenton mad but he got very upset all of a sudden and started to pick up toys and throw them while making his upset noises.
I stopped pushing Andrew and went closer to Trenton to see if there was something that I could figure out what was triggering his tantrum. I couldn't figure it out and Andrew started yelling that he wanted me to push him.
I turned my back to Trenton to walk to Andrew on the swing and Trenton came out of no where from behind me and pushed me. Then he ran up to Andrew and pushed him with great force on the swing. Trenton ran around a little bit making his noises while Andrew and I watched.
"Moochies. I wish Trenton didn't do that." I hear Andrew say in his sweet little voice.
" Me too but remember like I said before, Trenton can't help it."
"I know Moochies. Trenton is different and you say that everyone is different in their own way but Trenton is just a little more different, right?"
As I fought back tears, I was able to say, "Yes. Bubba you are right. I am so glad you remember me telling you that everyone is different. God just made T-man with a few challenges in life."
"Why did God do that?" Andrew asked so seriously
I went on to explain the best that I could to a five year old that God just makes everyone different and some people have challenges, etc.
"I wish God made Trenton like me so he could be like me." Andrew said.
I talked to Andrew how Trenton will always need him and I there to help him in life because of some of his challenges and so forth.
Andrew said, "Oh Moochies. Trenton is so much faster than me. I will never be able to keep up with him when I am older to help him. What will we do?"
I said, "He will slow down as he gets older. No worries. You will do a great job helping me with Trenton."
Andrew looked down at the ground, " I hope so because I really love Trenton and want him to be more like me."
I secretly laughed to myself! It was amazing to me that Andrew realized that Trenton was faster than him. Almost everyone is faster than Andrew....even his peers at school. Andrew is the slowest child I have ever been around. LOL!
Andrew and I continued to talk about Trenton and his challenges for a good ten minutes. Andrew asked a lot of questions and seemed to really understand. I have read a lot where siblings of a child with severe autism are the best kind of siblings. They have a good heart because they know what it is like to grow up with a sibling who has severe needs. Andrew, even with his high functioning autism, is going to be such a great brother to Trenton. I already see his big heart, getting bigger and bigger!
I have been wanting to share some of my favorite books that I have read on autism for awhile. I have read numerous books since Trenton was diagnosed. I read them because I wanted to educate myself and to prepare myself for the journey that I was embarking. The following is a list of my favorites in no particular order.
First, I do want to remind you that I have my own book out:)
1. Carly’s Voice: Breaking Through Autism by Arthur Fleischmann with Carly Fleischmann
Carly reminds me so much of Trenton. This book does a great job detailing what life is like with a child who is unable to communicate and who is on the severe end of the spectrum. The book is wrote by her father and Carly has some input in it as well. This book taught me a lot because Carly was eventually able to communicate at times with her parents through writing when she got older. She was able to explain why she does the things she does, etc. This family did a lot for Carly, and they obviously had a lot of money because not everyone is able to do for their child what they did. However, I really enjoyed it. I finally found a family who had a "wild" child that didn't sleep much. I could really relate to this book on so many levels. Wonderful book!!
2.Silent Running: Our Family's Journey to the Finish Line With Autism by Robyn Schneider. This is one family's story with twins who are non-verbal and severe. I enjoyed this book because the boys were always on the go just like Trenton. This family has inspired me in may ways and I have high hopes that Trenton can become a runner just like these boys. A great family where the husband and wife worked together to help their sons! 3. One of Us: A Family's Life With Autism by Mark Osteen
Wow! Great story of a family struggling to raise a child with severe autism! Again, this boy reminded me of Trenton. Definitely one of my top ones that I would recommend to people so they could read another persons words that could literally be my words!
4. Running with Walker: A MemoirBy Robert Hughes Another great family just struggling to raise a child with moderate to severe autism. The father just recently wrote another book that I have but had to put it down after the first chapter. Walker is now a grown man in his second book and I am not ready to read a book about that stress yet. Walker reminds me of Trenton because he was very active and would run away from his parents. Again, a great family telling their memoir to help others! 5. Dancing with Max: A Mother and Son Who Broke Free by Emily Colson
I appreciate this book even more now. Emily's husband left her and she raised her son Max by herself. Max kept her on her toes just like Trenton. I laughed at some of her stories and cried as well with her.
6. The Best Kind Of Different by Shonda Schilling, wife of Major League Baseball All Star, former Red Sox pitcher, Curt Schilling. This book is great for a family who is raising a child on the higher end of the spectrum. Their son reminds me a lot of Andrew.
7. A Regular Guy: Growing up with Autism by Laura Shumacker
This was my first favorite book:) This book shared some funny and sad stories of their son. This family had two other sons who are completely neurotypical. It does a good job explaining how other children are affected by the one who has autism.
8. The Reason I Jump By Naoki Higashida
This book is wrote by a man with autism. He writes about what it is like for him and why he did things the way he did.
9. Autism's Hidden Blessings by Kelly Langston
If you are a religious person, then I think you would enjoy this book. She highlights God's blueprint for a living a life full of joy and potential despite autism. A great uplifting book of hope!
10. The Out of Sync Child: Recognizing and Coping with Sensory Processing Disorder. If your child has extreme sensory problems along with their autism then I would recommend this book. I learned a lot in this book on the sensory disorder part and how to help.
My educational background was special education. Therefore, I have also bought and read some educational books. I also enjoyed the following educational books.
1. Engaging Autism by Stanley Greenspan and Serena Wieder
This book gives lots of practical methods for engaging children with autism. It gives ways to help cope with meltdowns...details how to help bring your child into our world...and gives various methods of therapy.
2. A Work in Progress By Ron Leaf & John McEachin.
I highly recommend this book to anyone who works with kids on the spectrum for a living. It is a behavioral management book that gives you strategies and curriculum for the treatment of behavior from autism. Its a collection of great programs for building skills as well as strategies for dealing with challenging behaviors. I keep this book close to me every single day!!!
3. Evidence Based Practices and Treatments for Children with Autism Foreword by Alan E. Kazdin
I enjoy knowing some of the best evidence based therapies and the studies behind them which is why I enjoyed this book. This book addresses communication treatment, social awareness and social skills treatment, behavioral treatment, diets and alternative treatments, etc.
This book would be over some peoples head especially if your child isn't in therapies. However, I enjoyed it but probably because special education was my background. My book collection is at my parents house. If I could see the collection, I am sure I would add a few more to my top list. However, these are the ones that stand out to me.
Today at preschool was not only Western Day but it was also a day for the students to bring in their pet and do a show and tell. Of course, Andrew wanted to bring Pepper. Andrew just adores Pepper so much! Andrew and I have been preparing all week for what he needed to tell his peers about Pepper. We practice...and practiced...and practiced some more! He asked me if I was going to be there with him and I told him I was. He said, "I am always better when you are around, Moochies." He always knows how to make my day better:)
Preparing Andrew for anything is a huge key with him. Anyway, he did great! When it was his turn he immediately blurted out what we talked about. It was adorable!!!!! I am so proud of him:)
In the other picture, you see my T-man with a huge smile! He was listening to me on the phone which obviously made him smile:) He had a very rough week last week and this week has been very rocky with him at home and at Harsha too. I believe some of it has to do with his routine being off last week.....Routine and consistency is such a huge key with these boys! It took Trenton awhile to get back in the routine which caused some major problems this week.
One of the very first things I was told after Trenton's diagnosis is that autism parents are judged by others more than any other type of parent. I believe it! One of the people who told me this was a doctor. The sad thing is that the people passing judgement are simply uneducated on autism or they are around children with autism for a very short while and think they know enough to pass judgement. I have heard a lot on my journey and it is hard to hear especially when I know ...what I go through daily.
My parents stayed with me for 3.5 days last week. They are around the boys the most other than myself of course. My mom said, "When I am around the boys for an extended period of days it is such a reminder of how hard you and the boys life is with the challenges of autism. It is so different than even being around them for one day. One really must live it." So very true! You have to live it and be around 24/7 to have a full understanding of the challenges of autism. This goes for the understanding of severe non-verbal autism and high functioning autism too.
We are having a rough week again.. Needless to say, I thought this was appropriate! No one should judge autism parents because of the choices we make. We know our children the best and we have very limited choices to pick from with very few people who understand. So lets all be kind!
It doesn't matter how hard the challenges of autism is or how often I am judged or talked about by other people...I wouldn't trade my boys or my life for anything! I am blessed beyond belief. All praise to God for placing the three of us together💙💙💙 I know many of you will appreciate the picture:)
I listened to an excellent sermon last Sunday at church. One of the things my preacher said in his sermon was, "I don't know why some of your children are born sick and mine aren't. I don't know why some of you battle cancer and some don't." etc...he added some other things in that section of his sermon and he is so right. We don't know why. It is something that we will never know.
I have read the Bible up and down and even more so since I have had my children. I searched and searched and look for answers as to "Why" this happened to me. I didn't find what my tired, exhausted, sad mind was looking for but instead I found some of the most amazing answers. I think most people turn to The Bible under tragedy to look for an exact sentence. It won't be there! Let me tell you what I have found and realize and what gets me through each of my days....
1. Trials. We all face trials....whether it is raising children with special needs, cancer, untimely deaths of loved ones, etc, we all face trials. In Romans we read this.... Romans 5: 3-5 Not only so, but we[a] also glory in our sufferings, because we know that suffering produces perseverance;4 perseverance, character; and character, hope.5 And hope does not put us to shame, because God’s love has been poured out into our hearts through the Holy Spirit, who has been given to us.
In my trials in life, I have built my character up and have a much different appreciation on life and a better understanding of the most important book in the world, THE BIBLE.
It doesn't matter what trial you are going through...life still goes on. It doesn't stop because of your trial. It still goes on so you have to battle through it and live on with what you have been granted.
2. People born with special needs so severe where they are always dependent on others to take care of them, is like a child. In Matthew we can read.."Truly I tell you, unless you change and become like little children, you will never enter the kingdom of heaven."
I have studied this and studied it....my boys may always be like a child. I know Trenton will. Therefore, he is one of God's angels..one that Christ wants us to be like....one that was sent here to try to make others "change their character"...to try to make others better people......they are our test...they are sent here to make a difference....they are sent here to tell the rest of us a lot and its up to us on how we respond to it. We are only here for a short while. We have one life and we all know how fast it goes. This is just a small walk compared to our next life so we all need to have a heart of a child and a heart of a special needs person!
3. In James we told to consider it "joy to have trials". It is hard to look at the trials of life as "joy" but it is. I have built my character up and become a much better person through the trials. Look at yourself and look at the character you have right now....Now think back to the person you were before the trials? Are you better? Do you have a better appreciation of things in life? Are you more thankful for the small things? Or are you exactly like you were before the trials? How are you responding to the trials God is giving you?
4. Hebrews 13:2 "Do not forget to entertain strangers, for by so doing some have unwittingly entertained angels." What is God telling us with this verse in the Bible. When we practice hospitality we just may be helping a messenger of God without realizing it. Who is the messenger? Does God send angels? Maybe he does....Maybe those adults who are like a child are angels sent from above to help us...to make us a better person...maybe they are our test.
5. None of this makes sense unless you have faith. We can read about faith in Hebrews. God tells us without faith we have nothing!
I personally get involved in the world at times and wish so much I could do this and do that with the boys. I wish I had a husband to walk this life with. I wish the boys didn't battle their challenges...I wish everyone just got along in life and that no one would see the bad in anyone! If I could change the world and take the evil out I would! I am just that kind of person. But, the world is what it is and we have to look to find the answers to it. These are some of my answers. I could make this post a really long post but I won't. Some of this make not make sense to you without some of the other verses but stay tuned....I'll get to them soon!
Whatever the circumstance you find yourself in, God is sovereignly arranging it for your good such as we find in Romans 8:28. Nothing can come into your life by accident or without God’s knowledge and divine stamp of approval. Even heart breaking tragedies like terminal diseases and the loss of loved ones are ordained by God for our good.
Please please please try to find the joy in your life...no matter how hard it is....no matter how difficult your life is....try to find it. I walk this life, the one life I have been granted with many daily struggles and trials with Trenton, but I do my best to find the joy in something. It is hard and some days I don't. But, in the overall outlook, I have found the joy and I am one blessed woman with two amazing boys who are God's messengers who have taught me a lot in life!
As I have said before in the past, I can't imagine being Trenton when he is sick. Overall, he is a very healthy kid besides the common cold. He simply doesn't get sick much
Yes, he vomits almost weekly but it is sensory induced. (When time allows, I plan on educating you on this blog about that issue.) However, it's been awhile since he has had any kind of flu.
Even when Trenton has a common cold, it is very bothersome because he is unable to blow his nose. He won't take any kind of medication. He can smell it in his sippy and won't drink it because it makes him gag and throw up. I've tried several different way and he is unable to take medicine when he is sick.
What is it like to care for a child with severe, non-verbal autism when they get a horrible flu?
It is brutal. It is sad. It is heartbreaking.
He vomited off and on for four days. He paced around the house. He went from bed to bed to couch to loveseat to floor and he did it all over again.
He vomited in every room of the house. He just paced the house and vomited. I am sure I told him over 50 times daily that we vomit in the bucket that I was walking beside him carrying most of the time....but he never did. He couldn't help it. With each and every minute that went by from Monday through Friday, my heartstrings were pulled and tangled. I hurt. I grieved for my 60 pound boy who was very sick but couldn't tell me how to help him.
I tried daily to see if he hurt everywhere. I used every form of communication that I had in my house but it never worked. I am fairly confident that he had severe body aches. In-between all the pacing he took approximately thirty baths daily. I AM NOT EXAGGERATING. I HAVE WITNESSES!!! I think the warm water made him feel better. He would get in the tub and lay for about five minutes. Then he would get out pacing the house.
I wish he had had a body that would let him relax. I found out this past week, that his body simply doesn't relax not even when he is the sickest he has ever been.
He isn't a good sleeper already and he went two days without sleeping much other than a ten minute cat nap here and there. By the end of the second day, I started feeling like I did in my sleep deprived days. Therefore, I called my parents and they came to my rescue like they always do! They came and helped me with Trenton.
My heart bleed for him! By the end of the third day we started having meltdowns and I think it is because he was simply tired of being so sick. That was his way of telling me.
My parents have always been there for the boys and I even when I was married. I am so thankful for that! God takes care of everyone. I may not be blessed with a husband in my house that helps me but I am blessed with great parents and family who do help me when I need it. I manage everything weekly with the boys. I have managed all the challenges of autism while single parenting even through the common stomach flu, common cold, etc. This time was different. There was something about this past horrible flu that hit Trenton hard.
I am so grateful and thankful for the all prayers. We had one of the hardest weeks that we have had in a very long time. But, as always, we survived and came out stronger.
Thankfully, on Saturday he FINALLY felt better!!!
I never thought I would be so thankful to wake up Saturday morning and roll over and see this scene:) Trenton didn't even play with his animals for four days!!!
On Saturday, Uncle Brent came over to help us too! He stained my deck for me along with my Dad! It has needed to be done ever since we moved in but obviously the boys comes first and nothing that needs to be done gets done unless my family comes:)
Andrew was crazy about Uncle Brent like always. Andrew was a good boy for the most part and let me stay by Trenton's side all week. However, by the time Saturday came, Andrew was ready to play with somebody. He played a little baseball with his uncle.
"Bye Grandpa. I will see you next time I am here." I say as I give my Grandpa, my hero, a big hug. I had just stepped in his house, which was once the place I raised my boys at, on my way back to Terre Haute. My grandma was already out in the drive way telling Trenton and Andrew bye.
When the boys and I visit my parents, we are so fortunate to always see my grandparents. They live in my old house on the family farm right next to my parents house.
My grandparents don't get around very good these days. It is not easy for them to do a lot of moving.
"I want to step out there in the driveway and tell them boys bye." He said all determined to see the boys off. He doesn't normally make it out to the van to tell the boys bye and it's very hard to transition the boys in their house for a quick bye. Therefore, it's normally just my grandma that tells the boys bye when we visit. However, this time Grandpa was determined to walk out to the driveway even though it isn't easy for him to see the boys off and I am so thankful he did.
It is very rare when Trenton looks someone in the eye. When he does it only last for a few short seconds. However on that day Trenton made eye contact and it lasted for the longest that I have ever seen him do with anyone.
As my grandpa approached the side of the van, he reached his delicate hand out. A hand that I love so much. A hand that I never fail to grab and hold when I am around him.
"Bye. Bye. Trenton." Grandpa says reaching for him. In that very moment, Trenton turned his head, looked at Grandpa right in the eyes and held his eyes on Grandpa for a good ten seconds. As his eyes were deadlock with my Grandpa's eyes, Trenton reached out and took his hand in his hand. In that moment, my son and Grandpa held hands and just locked eyes on each for awhile.
I watched as those two held hands and looked at each other. It was the most precious sight I had seen in a long time. It was hard to not cry. It was easy to smile. For approximately a good ten seconds, Trenton looked at Grandpa and I looked at Trenton and saw that beautiful soul! I saw the person locked inside his body. It was not only the most beautiful thing I have witnessed for awhile but it was a most amazing blessing that has been handed down from above.
I do believe that Trenton knows and understands everything that not only I do for him but what others do for him as well. There are several people who have influenced our lives and have went above and beyond to make our life possible and my grandparents are one of them. The connection that Trenton was able to make that day, although only for ten seconds, was the best connection that he has had with anyone else in a long time.
I can't help but think...Was that his way of thanking my grandparents for everything they do for us? Was he simply saying, "bye"? Did his body actually let him make a connection in that particular moment?
I am able to get him to look me in the eye daily but its only for one or two seconds and it's just a look. On this day and in that moment Trenton had a connection. He had life in those eyes! He was able to show that beautiful soul inside him.
I'm not sure when a moment like that will happen again. We never know when Trenton's body is able to let him do certain things such as eye contact. God made Trenton differently than he made me. Trenton doesn't need to look people in the eye. He doesn't need to make connections with people through something as simple as eye contact. As a neurotypical mother, I crave those rare moments from Trenton. I CRAVE THEM DAILY!!
Each day I wonder, "Will he look me in the eye today?" "Will today be the day that I get to share a connection with our eyes?"
Most days come and go and I don't get it. I don't get that small, little thing that I want so badly....but it's okay! I just look forward to when it will happen again and I am grateful when it does.
It would have been really easy for my Grandfather to pass on the opportunity. After all he is 89 years old, doesn't move very well, and had to walk a good way. However, he pushed himself that day and he was blessed with a moment that very few people get to experience with Trenton. I am so thankful I got to witness such a beautiful sight!
This was the first moment those two locked eyes. Trenton was a little less than one hour old. Who would have thought then what our lives had ahead of us.
Job 12:12 Is not wisdom found among the aged? Does not long life bring understanding?