Wednesday, July 5, 2017

Trenton Update

I need to brag about my T-man for a few minutes! This amazing child of mine is just unbelievable. I see the amazing works of God in him right before my eyes every single day.

I often think back what life was like when Trenton was a baby/toddler. If someone offered me money to pay off all of my debt to relive the first five years of Trenton's life over again, I would turn it down! There are few words to describe  what life was like and no one could ever begin to understand unless you are a parent of a child with classic non-verbal autism.

If you have followed my blog for awhile you know that Trenton never slept. I got about two hours of sleep every 24 hours. He cried and we battled meltdowns, some very dangerous meltdowns that involved breaking glass and running arms through glass windows. I could not take him anywhere. He would go into McDonalds or a simple store screaming and crying, and sometimes kicking and clinging on to the door to not go in. If I manage to get him in, he was unmanageable in the store. It was a success if we lasted one full minute.

He used to scream bloody murder when I would try to give him a bath. He used to have to swing in a special swing for hours upon hours in the middle of the night to meet his sensory needs. I have went to major hospitals and getting him into specialist of all kinds to try to help him. I spent every penny I had on all these communication apps, sensory processing disorder items, special items he needed, special supplements, etc to help him.  We have been through major battles of the war on autism but we are finally getting to where our battles are smaller. I can't even begin to tell you how amazing it feels! Yes we still have our moments and have bad days. Yes, I still battle small meltdowns,  sleepless nights, and all the things mentioned above but it is much less these days.

Trenton used to NEVER smile. Now I see him smile every single day! He will be seven next month and finally after almost 7 years of hard work, 5 1/2 years of nothing but therapy, I am seeing progress!! His progress is small and doesn't compare to a typical child but it is huge for our autism family!

I remember the days when the tears would roll down my face......tears of sadness, tears of frustration, tears of guilt, tears of hurt, and tears of joy. I have always found the joy that is mixed in all the other types of feelings that come with raising a child with autism.  It is hard and especially in the early days it is very hard. However, God guides us on how to handle the issues that arise in our life.
Even though it is hard, we are always suppose to be joyful in hope, patient in affliction, faithful in prayer (Romans 12:12) . Through my affliction in life and especially since my autism years, I have leaned on hope and prayer! In the book of James we are told blessed be the one who perseveres under trial. (James 1:12)

I remember many days and nights when it was hard to see the hope and hard to keep on going. However, our perseverance is starting to pay off!

This morning I went with the boys and some techs from the Harsha Autism Center (HAC) to the local library to enjoy their story time hour and Trenton did great! Andrew had his issues there too but we will discuss him on a later post.
 Of course, Trenton made his noises, stood up at times, fidgeted,  and had to move around, but for a boy who couldn't even walk into a place like this two years ago, this is amazing progress! He lasted 30 minutes in the story time hour. I am so proud of him!
He just keeps on getting better with me to go places in the community. Of course, it is still tough and nothing like a typical child experience but he is doing great! I can't wait to get our service dog because it will make it all that much better!!!

I could do more with him on some days but as autism families, we have to pick and choose our battles because nothing comes without consequences, even if it is a good experience. often times the consequences comes later and I have to mentally prepare myself for the sensory overload aftermath.

He continues to be sleeping well at night!! WOOT WOOT!!!!

One of the best things for him is to follow his daily routine and schedule. This helps keep his brain organized and makes things better for him. I could go on and on about how great Trenton has been lately. I couldn't be prouder of him. Each day I see all of our hard work paying off and it just makes my heart so happy!! It makes all the days we have to be out the door by 730 AM, worth it!! It makes all the battles I go through daily as a single mom completely worth it!!

It hasn't been easy but I wouldn't trade this life for anything! God sure did give me an amazing little guy/angel to raise. Through him I see and witness the amazing works of our God. I see and understand scripture much better now. He is truly one of God's angels and  I will ALWAYS believe that!

 Trenton is also getting so much better at trying to sit down at the table to eat! He used to never do this and still goes through times where he can't. However, lately he has really been rocking this out at home!
 Trenton and one of his techs from HAC at the library this morning.
 Andrew and one of the techs from HAC.

1 comment:

  1. Nana and Pops are so very proud of you, Tman!!!!! Faith in God is faith in His timing!!! We will NEVER give up on you!